Stages, Progression, and Recovery of Eating Disorders in Youth: STORY
Overview
We want to hear your STORY – Join our new research study!
We are calling on young people from all across the UK to take part in a new exciting study about the diverse experiences of young people with eating disorders growing up today. What factors make a person’s recovery journey quicker or slower, easier or harder? Having a clear understanding of this will allow us to design better, more personalised interventions for young people with eating disorders.
What does it involve?
You would take part for one year, during which you complete online surveys and tasks on your computer and your smartphone at different times. You can also choose to wear a smart ring for the year to measure your heart rate and sleep. If you live nearby, you can also attend two assessment visits at King’s College London or the University of Edinburgh, that involve cognitive tasks and brain scans. You can earn up to £175 by the end of your participation.
Who can participate?
Young people aged 16-25, who have a diagnosis of an eating disorder or think they may have an eating disorder. We also invite young people who have no history with an eating disorder or any other mental disorder to take part as healthy controls.
Are you interested in taking part in this study?
Planned end date
01 Jul 2025 13:18Conditions
Anorexia,Bulimia,Eating DisordersInclusion Criteria
General inclusion criteria for all groups for inclusion in this study are as follows:
- Aged 16-25 – all genders, all ethnicities
- Ability to give informed consent
- Access and ability to complete the self-reported assessments via smartphone and/or computer
- Willingness to use either their own Android smartphone or a provided Android study smartphone as their only
smartphone during the data collection period of 12 months
- Willingness and ability to install the RADAR Passive App and RADAR Active App on the study smartphone provided,
during the data collection period of 12 months
Inclusion criteria then differ per group and for those doing neuroimaging:
Inclusion criteria for the FREED group of this study:
- Current or suspected diagnosis of a DSM-5 / ICD-10 ED (e.g. AN, BN, BED) or any other related eating or feeding
disorder (e.g., OSFED)
- Illness duration of < 3 years
Inclusion criteria for the non-FREED group of this study:
- Current or suspected diagnosis of a DSM-5 / ICD-10 ED (e.g. AN, BN, BED) or any other related eating or feeding
disorder (e.g., OSFED)
- Illness duration of >3 years
Inclusion criteria healthy controls:
- No current or past DSM-5/ICD-10 ED diagnosis
- A score below the clinical cut-off for the EDDS screening measures
- BMI > 18.5kg/m2
- No current or past mental health diagnoses
Inclusion criteria for the neuroimaging part of the study:
- Willingness and ability to travel to King’s College London for the neuroimaging session
Exclusion Criteria
General exclusion criteria for all groups:
- Insufficient knowledge of English to complete study assessments
- Severe learning disabilities
- Any other major medical condition which might impact the patient’s ability to participate in normal daily activities (e.g.,
due to hospitalisations)
- Residing outside the UK
Exclusion criteria for the neuroimaging part of this study:
- Restricted mobility, including the inability to lie flat for 1 hour.
- A history of brain injuries including stroke, tumours, epilepsy, neurodegenerative or other neurological disorders
- A history of head or eye injury
- Metallic implants anywhere in the head or body
- Pregnancy or suspected pregnancy
- Overly long travel to neuroimaging site (i.e. >1.5 hours)
